Bibliografía del proyecto DisabilityWiki

Esta bibliografía reúne las fuentes utilizadas en todo DisabilityWiki. Está organizada por tema e incluye marcos internacionales, organizaciones lideradas por personas con discapacidad, recursos gubernamentales, fuentes académicas y materiales comunitarios.

Este es un documento vivo. Para orientación sobre cómo agregar fuentes, consulta Cómo Contribuir.

Marcos internacionales y derechos humanos

Convención de las Naciones Unidas sobre los Derechos de las Personas con Discapacidad (CDPD)

Fuentes primarias

United Nations. (2006). Convention on the Rights of Persons with Disabilities. New York: United Nations.
- Texto completo: https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities
- Página de UN DESA: https://social.desa.un.org/issues/disability/crpd/convention-on-the-rights-of-persons-with-disabilities-crpd
United Nations. (2006). Optional Protocol to the Convention on the Rights of Persons with Disabilities. New York: United Nations.
- Texto completo: https://www.un.org/disabilities/documents/convention/convoptprot-e.pdf
Committee on the Rights of Persons with Disabilities. General Comments. Geneva: OHCHR.
- Disponible en: https://www.ohchr.org/en/treaty-bodies/crpd

Fuentes secundarias

Bantekas, I., Stein, M.A., & Anastasiou, D. (Eds.). (2018). The UN Convention on the Rights of Persons With Disabilities: A Commentary. Oxford: Oxford University Press.
de Beco, G. (Ed.). (2013). Article 33 of the UN Convention on the Rights of Persons with Disabilities: National Structures for the Implementation and Monitoring of the Convention. Leiden: Martinus Nijhoff.
de Beco, G., Quinlivan, S., & Lord, J.E. (Eds.). (2019). The Right to Inclusive Education in International Human Rights Law. Cambridge: Cambridge University Press.

Otros instrumentos internacionales

United Nations. (1948). Universal Declaration of Human Rights. New York: United Nations.
- https://www.un.org/en/about-us/universal-declaration-of-human-rights
United Nations. (1993). Standard Rules on the Equalization of Opportunities for Persons with Disabilities. Resolution 48/96. New York: United Nations.
World Health Organization. (2001). International Classification of Functioning, Disability and Health (ICF). Geneva: WHO.
- https://www.who.int/standards/classifications/international-classification-of-functioning-disability-and-health

Marcos legales de Estados Unidos

Americans with Disabilities Act (ADA)

Americans with Disabilities Act of 1990, 42 U.S.C. § 12101 et seq.
- Texto completo (con enmiendas): https://www.ada.gov/law-and-regs/ada/
- Resumen de ADA National Network: https://adata.org/learn-about-ada
ADA Amendments Act of 2008, Pub. L. 110-325.
U.S. Department of Justice. ADA Regulations.
- https://www.ada.gov/law-and-regs/regulations/

Rehabilitation Act

Rehabilitation Act of 1973, 29 U.S.C. § 701 et seq.
- Sección 504: https://www.hhs.gov/sites/default/files/ocr/civilrights/resources/factsheets/504.pdf
- Sección 508: https://www.section508.gov

Educación

Individuals with Disabilities Education Act (IDEA), 20 U.S.C. § 1400 et seq.
- https://sites.ed.gov/idea/
Education for All Handicapped Children Act of 1975, Pub. L. 94-142.

Vivienda

Fair Housing Act of 1968, as amended, 42 U.S.C. § 3601 et seq.
- https://www.hud.gov/program_offices/fair_housing_equal_opp/fair_housing_act_overview

Transporte

Air Carrier Access Act of 1986, 49 U.S.C. § 41705.
- https://www.transportation.gov/airconsumer/passengers-disabilities

Marcos legales internacionales por país

Canadá

Canadian Human Rights Act, R.S.C. 1985, c. H-6.
Accessible Canada Act, S.C. 2019, c. 10.
- https://www.canada.ca/en/employment-social-development/programs/accessible-canada.html

Reino Unido

Equality Act 2010.
- https://www.legislation.gov.uk/ukpga/2010/15/contents
Disability Discrimination Act 1995 (sustituida por la Equality Act 2010).

Unión Europea

European Commission. (2021). Strategy for the Rights of Persons with Disabilities 2021-2030.
- https://commission.europa.eu/strategy-and-policy/policies/justice-and-fundamental-rights/disability_en

Australia

Disability Discrimination Act 1992.
- https://www.legislation.gov.au/Details/C2018C00125

Organizaciones lideradas por personas con discapacidad

Estados Unidos

ADAPT. https://adapt.org
Autistic Self Advocacy Network (ASAN). https://autisticadvocacy.org
Center for Independent Living, Berkeley. https://www.centerforindependentliving.org
Disability Rights Education and Defense Fund (DREDF). https://dredf.org
National Council on Independent Living (NCIL). https://ncil.org
Not Dead Yet. https://notdeadyet.org
Self Advocates Becoming Empowered (SABE). https://www.sabeusa.org
The Arc. https://thearc.org

Internacional

Disabled Peoples’ International (DPI). https://www.disabledpeoplesinternational.org
European Disability Forum. https://www.edf-feph.org
Inclusion International. https://inclusion-international.org
Independent Living Institute. https://www.independentliving.org
World Blind Union. https://worldblindunion.org
World Federation of the Deaf. https://wfdeaf.org

Historia de la discapacidad

Libros

Longmore, P.K. (2003). Why I Burned My Book and Other Essays on Disability. Philadelphia: Temple University Press.
Longmore, P.K., & Umansky, L. (Eds.). (2001). The New Disability History: American Perspectives. New York: NYU Press.
Nielsen, K.E. (2012). A Disability History of the United States. Boston: Beacon Press.
Pelka, F. (2012). What We Have Done: An Oral History of the Disability Rights Movement. Amherst: University of Massachusetts Press.
Shapiro, J.P. (1993). No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Times Books.
Burch, S. (2021). Committed: Remembering Native Kinship in and beyond Institutions. Chapel Hill: University of North Carolina Press. (Ganador del Outstanding Book Award 2022 de la Disability History Association.)
Cohen, A. (2016). Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck. New York: Penguin Press.
Gerber, D.A. (Ed.). (2012). Disabled Veterans in History (ed. ampliada y rev.). Ann Arbor: University of Michigan Press.
Metzler, I. (2006). Disability in Medieval Europe: Thinking about Physical Impairment during the High Middle Ages, c.1100–c.1400. London: Routledge.

Eventos clave

National Park Service. “Disability History: The Disability Rights Movement.”
- https://www.nps.gov/articles/disabilityhistoryrightsmovement.htm
Disability Rights California. “Section 504 Sit-In.”
- Patient Rights Advocacy and Disability History: https://www.disabilityrightsca.org

Modelos y teoría de la discapacidad

Textos fundacionales

Oliver, M. (1990). The Politics of Disablement. London: Macmillan.
Oliver, M. (1996). Understanding Disability: From Theory to Practice. London: Macmillan.
Shakespeare, T. (2006). Disability Rights and Wrongs. London: Routledge.
Shakespeare, T. (2014). Disability Rights and Wrongs Revisited (2nd ed.). London: Routledge.
Union of the Physically Impaired Against Segregation (UPIAS). (1976). Fundamental Principles of Disability. London: UPIAS.
Stone, D.A. (1984). The Disabled State. Philadelphia: Temple University Press. (El texto que orienta: la “discapacidad” como categoría administrativa que los Estados usan para distribuir la ayuda.)
Campbell, F.K. (2009). Contours of Ableism: The Production of Disability and Abledness. Basingstoke: Palgrave Macmillan.
McRuer, R. (2006). Crip Theory: Cultural Signs of Queerness and Disability. New York: NYU Press.
Kafer, A. (2013). Feminist, Queer, Crip. Bloomington: Indiana University Press.
Mitchell, D.T., & Snyder, S.L. (2000). Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: University of Michigan Press. (Nombra la “prótesis narrativa” (narrative prosthesis): la lente esencial para evaluar las representaciones de la discapacidad en la ficción.)
Garland-Thomson, R. (1997). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. New York: Columbia University Press.
Linton, S. (1998). Claiming Disability: Knowledge and Identity. New York: NYU Press.

Justicia para las personas con discapacidad

Sins Invalid. (2019). Skin, Tooth, and Bone: The Basis of Movement is Our People (2nd ed.).
- https://www.sinsinvalid.org
Berne, P., Morales, A.L., Langstaff, D., & Sins Invalid. (2018). “Ten Principles of Disability Justice.” WSQ: Women’s Studies Quarterly, 46(1&2), 227-230.
Piepzna-Samarasinha, L.L. (2018). Care Work: Dreaming Disability Justice. Vancouver: Arsenal Pulp Press.
Russell, M. (2019). Capitalism and Disability: Selected Writings by Marta Russell (K. Rosenthal, Ed.). Chicago: Haymarket Books. (Economía política de la discapacidad; una crítica marxista de los límites de un enfoque puramente de derechos civiles, incluida la ADA.)

Interseccionalidad y discapacidad

Annamma, S.A., Connor, D., & Ferri, B. (2013). “Dis/ability critical race studies (DisCrit): Theorizing at the intersections of race and dis/ability.” Race Ethnicity and Education, 16(1), 1-31.
Connor, D.J., Ferri, B.A., & Annamma, S.A. (Eds.). (2016). DisCrit: Disability Studies and Critical Race Theory in Education. New York: Teachers College Press.
Erevelles, N. (2011). Disability and Difference in Global Contexts: Enabling a Transformative Body Politic. New York: Palgrave Macmillan.
Schalk, S. (2018). Bodyminds Reimagined: (Dis)ability, Race, and Gender in Black Women’s Speculative Fiction. Durham: Duke University Press.

Estudios Mad y discapacidad psiquiátrica

LeFrançois, B.A., Menzies, R., & Reaume, G. (Eds.). (2013). Mad Matters: A Critical Reader in Canadian Mad Studies. Toronto: Canadian Scholars’ Press.
Price, M. (2011). Mad at School: Rhetorics of Mental Disability and Academic Life. Ann Arbor: University of Michigan Press.
Pickens, T.A. (2019). Black Madness :: Mad Blackness. Durham: Duke University Press.

Colonialismo y el Sur Global

Meekosha, H. (2011). “Decolonising disability: thinking and acting globally.” Disability & Society, 26(6), 667-682.
Imada, A.L. (2017). “A decolonial disability studies?” Disability Studies Quarterly, 37(3).
Puar, J.K. (2017). The Right to Maim: Debility, Capacity, Disability. Durham: Duke University Press. (Introduce la “debilitación” (debility); influyente pero cuestionado — su análisis de Israel/Palestina ha recibido críticas sustanciales, que conviene sopesar.)

Cura, cuidado, acceso y crip technoscience

Clare, E. (2017). Brilliant Imperfection: Grappling with Cure. Durham: Duke University Press.
Taylor, S. (2017). Beasts of Burden: Animal and Disability Liberation. New York: The New Press.
Hamraie, A. (2017). Building Access: Universal Design and the Politics of Disability. Minneapolis: University of Minnesota Press.
Hamraie, A., & Fritsch, K. (2019). “Crip technoscience manifesto.” Catalyst: Feminism, Theory, Technoscience, 5(1).
Nishida, A. (2022). Just Care: Messy Entanglements of Disability, Dependency, and Desire. Philadelphia: Temple University Press.

Injusticia epistémica (emparejamientos de lente prestada)

Fricker, M. (2007). Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press. (Un texto de filosofía, no específico sobre discapacidad — emparéjalo con trabajo sobre discapacidad y estudios Mad acerca de no ser creído por médicos, tribunales y oficinas de prestaciones.)
Samuels, E. (2017). “Six ways of looking at crip time.” Disability Studies Quarterly, 37(3).

Estadísticas y datos sobre discapacidad

Normas internacionales

Washington Group on Disability Statistics.
- Sitio web: https://www.washingtongroup-disability.com
- Conjuntos de preguntas: https://www.washingtongroup-disability.com/question-sets/
World Health Organization. “Collection of Data on Disability.”
- https://www.who.int/activities/collection-of-data-on-disability
United Nations Statistics Division. “Disability Statistics.”
- https://unstats.un.org/unsd/methodology/citygroups/washington.cshtml

Fuentes de datos

Annual Disability Statistics Compendium. Institute on Disability, University of New Hampshire.
- https://disabilitycompendium.org
U.S. Census Bureau. American Community Survey Disability Statistics.
- https://www.census.gov/topics/health/disability.html
U.S. Bureau of Labor Statistics. Persons with a Disability: Labor Force Characteristics.
- https://www.bls.gov/cps/cpsdisability.htm

Guías y kits de herramientas

CBM Global. Disability Data Advocacy Toolkit.
- https://cbm-global.org/resource/disability-data-advocacy-toolkit
American Foundation for the Blind. Resource Guide to Disability Statistics.
- https://afb.org/research-and-initiatives/statistics/stats-resource-guide

Métodos y ética de investigación

Investigación inclusiva

National Disability Authority (Ireland). Ethical Guidance for Research with People with Disabilities.
- https://nda.ie/publications/ethical-guidance-for-research-with-people-with-disabilities-report
IASSIDD. Ethics Guidelines for International, Multi-Centre Research Involving People with Intellectual Disabilities.
- https://www.iassidd.org/ethics-guidelines/
Disability Innovation Institute, UNSW. Doing Research Inclusively: Guidelines for Co-Producing Research with People with Disability.
- https://www.disabilityinnovation.unsw.edu.au
Rios, D., Magasi, S., Novak, C., & Harniss, M. (2016). “Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies.” American Journal of Public Health, 106(12), 2137-2144.
- https://pmc.ncbi.nlm.nih.gov/articles/PMC5104996/

Ética de la investigación

U.S. Department of Health and Human Services. The Belmont Report.
- https://www.hhs.gov/ohrp/regulations-and-policy/belmont-report/index.html
Nind, M. (2014). What is Inclusive Research? London: Bloomsbury.
Walmsley, J., & Johnson, K. (2003). Inclusive Research with People with Learning Disabilities: Past, Present and Futures. London: Jessica Kingsley Publishers.

Normas de accesibilidad

Accesibilidad web

W3C Web Accessibility Initiative (WAI).
- https://www.w3.org/WAI/
Web Content Accessibility Guidelines (WCAG) 2.1.
- https://www.w3.org/WAI/standards-guidelines/wcag/
Section 508 Standards.
- https://www.section508.gov

Diseño universal

Center for Universal Design, North Carolina State University. The Principles of Universal Design.
- https://design.ncsu.edu/research/center-for-universal-design/
CAST. Universal Design for Learning Guidelines.
- https://udlguidelines.cast.org

Organización e incidencia

Guías y recursos

Independent Living Institute. Tools for Power: A Resource Kit for Independent Living.
- https://www.independentliving.org/toolsforpower/
National Council on Independent Living. Advocacy and Lobbying in Centers for Independent Living.
- https://ncil.org/5-for-5-campaign/fact-sheets/advocacy-and-lobbying-in-centers-for-independent-living/

Protesta accesible

Disability Rights Education and Defense Fund. Protesting While Disabled Pocket Guide.
- https://dredf.org/protesting-while-disabled-pocket-guide/
Commons Library. Making Protest Accessible: Tips and Checklists for Actions.
- https://commonslibrary.org/making-protest-accessible-tips-and-checklists-for-actions/
Liberty (UK). How to Organise a More Accessible Protest.
- https://www.libertyhumanrights.org.uk/advice_information/organise-a-more-accessible-protest/

Empleo

Recursos gubernamentales

U.S. Equal Employment Opportunity Commission. ADA Resources.
- https://www.eeoc.gov/disability-discrimination
Job Accommodation Network (JAN).
- https://askjan.org

Organizaciones

Disability:IN.
- https://disabilityin.org
APSE (Association of People Supporting Employment First).
- https://apse.org

Educación

Recursos gubernamentales

U.S. Department of Education. Office of Special Education Programs.
- https://www2.ed.gov/about/offices/list/osers/osep/index.html
U.S. Department of Education. Office for Civil Rights.
- https://www.ed.gov/ocr

Organizaciones

AHEAD (Association on Higher Education and Disability).
- https://www.ahead.org
National Center for Learning Disabilities.
- https://www.ncld.org
Understood.
- https://www.understood.org

Prestaciones y seguridad económica

Programas gubernamentales (EE. UU.)

Social Security Administration. Disability Benefits.
- https://www.ssa.gov/benefits/disability/
Centers for Medicare & Medicaid Services.
- https://www.cms.gov

Recursos

ABLE National Resource Center.
- https://www.ablenrc.org
Benefits.gov.
- https://www.benefits.gov

Vivienda

Recursos gubernamentales (EE. UU.)

U.S. Department of Housing and Urban Development. Fair Housing and Equal Opportunity.
- https://www.hud.gov/program_offices/fair_housing_equal_opp

Informes

Technical Assistance Collaborative. Priced Out (informes anuales).
- https://www.tacinc.org/resources/priced-out/

Salud

Organizaciones

American Association on Health and Disability.
- https://www.aahd.us
National Alliance on Mental Illness (NAMI).
- https://www.nami.org

Recursos para crisis

Líneas de ayuda y apoyo

988 Suicide and Crisis Lifeline (EE. UU.).
- https://988lifeline.org
Crisis Text Line.
- https://www.crisistextline.org
Organizaciones de derechos de las personas con discapacidad (por estado).
- https://www.ndrn.org/about/ndrn-member-agencies/

Medios y cultura

Medios sobre discapacidad

Disability Visibility Project (Alice Wong).
- https://disabilityvisibilityproject.com
Wong, A. (Ed.). (2020). Disability Visibility: First-Person Stories from the Twenty-First Century. New York: Vintage Books.

Recursos sobre representación

RespectAbility. Entertainment and Media.
- https://www.respectability.org

Programas académicos

Programas de estudios sobre discapacidad

Society for Disability Studies.
- https://disstudies.org
Syracuse University Disability Studies.
- https://soe.syr.edu/disability-studies/
University of Illinois Chicago. Department of Disability and Human Development.
- https://ahs.uic.edu/disability-human-development/
CUNY School of Professional Studies. Disability Studies Programs.
- https://sps.cuny.edu/disability-studies-programs

Revistas

Disability Studies Quarterly. https://dsq-sds.org
Disability & Society. Taylor & Francis.
Journal of Disability Policy Studies. SAGE.
Review of Disability Studies. University of Hawaii.

Recursos adicionales

Directorios y bases de datos

ILRU Directory of Centers for Independent Living.
- https://www.ilru.org/projects/cil-net/cil-center-and-association-directory
Disability Rights Digital Library.
- https://researchguides.library.syr.edu/disabilitystudies

Lenguaje sencillo y accesibilidad

Plain Language Action and Information Network.
- https://www.plainlanguage.gov
WebAIM.
- https://webaim.org

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